February 5, 2026

Congress Increases National Institutes of Health Funding, Strengthens Patient Transparency, and Extends Telehealth

Congress recently passed its fiscal year 2026 appropriations bill for the NIH, securing more than $47 billion for the agency and several key health reforms championed by the cystic fibrosis community. This is a step forward for the future of medical research funding and for the important work being done to develop treatments and an eventual cure for CF. 

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Help Improve Care for Pregnant Adults With CF

If you are an adult with cystic fibrosis who has been pregnant at any point since 2019, Community Voice wants you to share your experiences with nutrition and digestive symptoms during pregnancy. These insights and experiences will help inform resources for clinicians who care for pregnant adults with CF. Join Community Voice by Feb. 15 for the opportunity to participate. 

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Sign Up to Participate in a Clinical Trial Today 

Your participation in clinical trials can help drive progress for all people with cystic fibrosis. Visit the CF Clinical Trial Finder to find trials you may be eligible for.   

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From the CF Community Blog: Finding Community Through an Unexpected Hobby

Keshav Harpavat turned his passion for music into an opportunity to help members of the cystic fibrosis community. His organization, Pipes for the People, teaches people with CF how to play the chanter, a smaller, flute-like version of the highland bagpipe, to help potentially improve breathing capacity. Keshav continues to grow this project, even receiving an Impact Grant from the Foundation, and is always looking for more ways to support the CF community. 

Read Keshav's blog »