From Cystic Fibrosis Foundation <[email protected]>
Subject CF Community Blog updates — Straight to your inbox!
Date February 1, 2026 11:15 AM
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Stay connected with the latest stories from the CF community


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February 2026



CF Foundation Community Blog Digest


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Realizing My Health Story Was Bigger Than Aging

By Tom Worth, an adult with CF

"As I entered middle age, what I thought was normal aging turned out to be undiagnosed CF -- a realization that reshaped everything from daily treatments to my understanding of my family's health history."

Read Tom ([link removed])




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PATIENT ASSISTANCE

The Power of Community: When Care Becomes a Chorus

By Michelle Patrovani, a parent of two adults with CF

"Watching my son struggle without access to his CF medication was heartbreaking. But the hope that came when our community rallied behind us is something I'll never forget."

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LATE DIAGNOSIS

Discovering My CF Diagnosis as a Teenager

By Anish Roy, a teen with CF

"After years of unexplained symptoms and setbacks, my cystic fibrosis diagnosis became both an answer and a turning point -- turning my struggle into resilience and my passion into purpose."

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