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** In this Update…
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💜 Epilepsy Awareness Month: The Transformative Power of Research
🤝 Recap: UNITE to CURE Epilepsy
👟 Team CURE Epilepsy Spotlight on Cameron Dodd
💊 New Resource: Rescue Medications Hub
📆 Mark Your Calendar: #GivingTuesday is almost here
🎙️ New from the Seizing Life Podcast
🧠 New from Epilepsy Explained
** Epilepsy Awareness Month: Celebrating the Transformative Power of Research
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For Epilepsy Awareness Month 2025, join us in spreading awareness about the life-changing impact of epilepsy research. With the continued threat to the health of the American medical research landscape, awareness about the powerful, transformative effects of research is key to driving action.
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Laura’s story is a testament to the profound way that clinical trials can change lives. Laura was diagnosed with epilepsy as a child. Medications failed to control her seizures and Laura endured countless of them at home and in school. She was evaluated for epilepsy surgery, but with the technology available in the early 1990s, doctors couldn’t pinpoint where the seizures started in the brain.
One day, Laura’s neurologist recommended her for an NIH clinical trial on the functional MRI (fMRI) test, changing the course of her life.
Watch Now ([link removed])
** Recap: UNITE to CURE Epilepsy
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Thank you to everyone who participated in UNITE to CURE Epilepsy! This year, we featured Taking Flight grantee Dr. Rachel June Smith and her team of early career researchers from the University of Alabama at Birmingham (UAB) Neural Signal Processing and Modeling Lab. They are working to localize seizures and develop brain stimulation techniques that may one day change how we can treat focal epilepsy. Learn about each of their fascinating projects!
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Dr. Rachel June Smith ([link removed])
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Helen Brinyark ([link removed])
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Caila Coyne ([link removed])
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Logan Cook ([link removed])
** Team CURE Epilepsy Spotlight on Cameron Dodd
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Ready, set, research! For Cameron, running a marathon wasn’t just a lifelong dream – it was a chance to create a brighter future. This fall, Cameron laced up her running shoes as part of Team CURE Epilepsy, completing the Chicago Marathon in honor of her younger sister, Stacy.
Stacy is 26 and developed epilepsy as an infant. In 2007, she was diagnosed with Dravet Syndrome. This disorder has profoundly affected Stacy’s life, causing developmental delays and severe, uncontrolled seizures.
As a member of Team CURE Epilepsy, Cameron raised over $7,500 to support pioneering epilepsy research, inspired by Stacy every step of the way.
“If and when you meet Stacy, you’d never know the struggles she’s endured. She is the most happy-go-lucky gal. Her beautiful blue eyes and her wonderful, infectious smile will melt your heart. Stacy is the best sister I could ever ask for - and I feel so lucky to be running for her.”
— Cameron Dodd
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** New Resource: Rescue Medications Hub
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Got questions about seizure rescue medication? We’ve got answers in our new hub. Rescue meds are fast-acting drugs used to manage seizure emergencies, like status epilepticus and seizure clusters.
This hub was made possible by support from Neurelis.
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** Mark Your Calendar for #GivingTuesday
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As we look ahead to this season of gratitude, we want to take a moment to thank everyone who makes up our incredible epilepsy community—individuals living with epilepsy, caregivers, advocates, clinicians, and beyond. Your strength, compassion, and commitment inspire everything we do.
This Giving Tuesday, December 2, we invite you to join us in celebrating that spirit of hope and generosity. Mark your calendars and stay tuned for how you can make an impact!
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** New from the Seizing Life Podcast
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On the Brink of Breakthrough: How an Arthritis Med Could Stop Seizures
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A Family’s Journey with Panayiotopoulos Syndrome
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Turning the Tragedy of SUDEP into Hope: The Story of the Joanna Sophia Foundation
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A Mother and Neurologist Shares Her Son’s Amazing Journey From Traumatic Birth to Seizure Freedom
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** New from Epilepsy Explained
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Gene Therapy Explained
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Post-Traumatic Epilepsy Explained
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Juvenile Myoclonic Epilepsy Explained
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You make it all possible. Give today to fuel scientific discovery.
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