October 30, 2025

Honoring CF Foundation Co-Founder and Trailblazer, Doris Tulcin

We are deeply saddened to share that Doris Tulcin, co-founder of the Foundation and an advocate for people with cystic fibrosis, has passed away. Doris served in key roles throughout her career, including national president of the CF Foundation, chapter board chair and executive director of the Greater New York Chapter, and three terms as the National Board of Trustees Chair. Never wavering in her support of people with CF, she served as chair emeritus of the Foundation’s Board of Trustees until her passing.   

Read about Doris’s legacy »

Supplemental Nutrition Assistance Program (SNAP) Benefits Will Be Paused Starting Nov. 1

Will you or your loved one with CF be impacted when SNAP benefits are paused Nov. 1? You’re not alone, and help is available. Find free, nourishing food near you or contact Compass for personalized, confidential assistance. 

Contact Compass »

Tell Congress: Health Care Decisions Cannot Wait

Millions of Americans, including those with cystic fibrosis, rely on enhanced Advance Premium Tax Credits (eAPTCs) to afford coverage. These credits are set to expire at the end of the year, putting access to affordable insurance at risk. While Congress may be stalled, people with CF cannot wait. Tell Congress: extend eAPTCs NOW. 

Send a message »

Help Determine Future CF Research

We’re looking for participants to join our Clinical Research Committee to review grant proposals on various CF clinical research topics and help improve research projects. If you are an adult with cystic fibrosis or the parent of a child with CF, join Community Voice by Oct. 31 to receive an invitation to apply to the committee. 

Join Community Voice »

Community Highlights from the North American Cystic Fibrosis Conference 

Three adults with cystic fibrosis — Sydney Willig, Jennifer Kyle, and Rose Williams — share their perspectives on key topics from this year’s NACFC plenaries, including the impact of CFTR modulators, aging with CF, and health disparities.

• Read Sydney’s blog » 
• Read Jennifer’s blog » 
• Read Rose’s blog »