Hi there,

Nonprofit organizations in the Rare As One Network need your support. Check out a few of our available projects below and sign up for one that resonates with you:

Global DARE Foundation

11–20 HOURS

Global ARD Data Compliance & Access Project

Global DARE Foundation

Ensure compliant, secure principal investigator access to Adult Refsum Disease data across sites for long-term, global research use.

Alström Syndrome International

1–5 HOURS

Update Nonprofit to Texas from Maine

Alström Syndrome International

Help move nonprofit location so that official paperwork, yearly report, and other relevant materials can be connected to Texas where the Executive Director lives.

NKH Crusaders

6–10 hours

Dispute Fiscal Sponsor

NKH Crusaders

Help maintain the integrity of a newly established 501(c)(3) and draft a fiscal sponsor termination agreement.

Thank you for your commitment to our mission and our nonprofit partners. We could not do this work without you!

Best,
The We The Action Team


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