Hi
there,
Nonprofit organizations in the Rare As One Network need your support. Check out a few of our available projects below and sign up for one that resonates with you:
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Global ARD Data Compliance & Access Project
Global DARE Foundation
Ensure compliant, secure principal investigator access to Adult Refsum Disease data across sites for long-term, global research use.
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Update Nonprofit to Texas from Maine
Alström Syndrome International
Help move nonprofit location so that official paperwork, yearly report, and other relevant materials can be connected to Texas where the Executive Director lives.
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Dispute Fiscal Sponsor
NKH Crusaders
Help maintain the integrity of a newly established 501(c)(3) and draft a fiscal sponsor termination agreement.
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Thank you for your commitment to our mission and our nonprofit partners. We could not do this work without you!
Best,
The We The Action Team
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