From Cystic Fibrosis Foundation <[email protected]>
Subject Together: a Community Update
Date August 7, 2025 8:19 PM
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Register for ROSE UP — Raise funds your way to help cure CF


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# August 7, 2025



How Will You ROSE UP?

You're invited to participate in ROSE UP
— a nationwide fundraising event where you choose how to take action ([link removed])
to help cure cystic fibrosis. Whether you're playing pickleball, baking treats, or gaming with friends, ROSE UP fits your life, your schedule, and your interests. Get started today by creating your fundraiser, choosing your activity, and rallying your friends and family to donate in support of your efforts.


Register for ROSE UP » ([link removed])


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Lung Transplant Guide Now Available

Receiving a transplant is a physical and psychological journey. If you are waiting for -- or recovering from -- a lung transplant, use the handout "
% link:[link removed] name="Mental Health and Lung Transplant: Leading Up to and Recovering from Surgery" content="Mental Health and Lung Transplant: Leading Up to and Recovering from Surgery" %]," (
% link:[link removed] name="also available in Spanish" content="also available in Spanish" %]) to learn about ways to cope with the emotional challenges that accompany the transplant journey.


Get the checklist » ([link removed])


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Get the Answers You Need About Clinical Trial Participation

Have questions about clinical trials? Get the answers you need to help make an informed decision by contacting the clinical trial navigator.
The clinical trial navigator is a designated person ([link removed])
who provides one-on-one assistance to people with CF and their families who have questions about clinical trials.


Get in touch with the clinical trial navigator » ([link removed])


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From the CF Community Blog: Works by the CF Community 2025

On the CF Community Blog,
we’re highlighting five creators who are raising awareness about cystic fibrosis ([link removed]). By sharing their personal experiences with the disease through written and spoken works, these creators offer powerful perspectives that foster understanding and connection.


Discover work by the CF community » ([link removed])


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Support ([link removed])

Get Involved ([link removed])

CF Community Blog ([link removed])



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www.cff.org ([link removed])

www.cff.org en español ([link removed])


4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US


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