|
| In this Update…
🐶 Webinar on Seizure Dogs: The Science Behind the Sniff 🚲 Clip In, Pedal Hard, Power Research ✨ Celebrate Scientific Progress at Night of Discovery ✏️ How Has Research Impacted Your Life? 🦄 Recap: Joanna Sophia Around the World In 5k 2025 📆 Upcoming Events 🎙️ New from the Seizing Life Podcast 🧠 New from Epilepsy Explained |
|
|
|
|
|
|
|
|
|
|
| Webinar 🐶 Epilepsy Service Dogs: The Science Behind the Sniff |
|
|
|
|
|
|
|
|
|
|
|
| There’s a reason they say dogs are man’s best friend! Our paw-some webinar, happening September 4th at 5:00 PM CT, is for anyone who is interested in getting their own seizure dog or who is curious about how dogs can use their noses to detect seizures.
Attendees will learn: About the two types of epilepsy service dogs — seizure alert dogs and seizure rescue dogs. What research says on how and why seizure alert dogs can provide warnings to those living with epilepsy and their loved ones. The potential for further research surrounding seizure alert dogs and their future role in seizure detection. What steps someone can take if they are interested in an epilepsy service dog for themselves or a loved one.
You won’t want to miss this dog-gone informative webinar! |
| | Clip In, Pedal Hard, Power Research |
|
|
|
|
|
|
|
|
|
|
|
| Now in its fourth year, Clip In & Pedal 4 Epilepsy is more than just a bike ride — it’s a powerful act of love and determination. The Schueller family hosts this 100-mile bike ride annually in honor of their daughter, Haddie, who has nocturnal frontal lobe epilepsy. Haddie has experienced over 400 seizures in her young life, but with the help of medication, they are now controlled, and she is thriving.
Each year, riders from all walks of life come together to show that epilepsy doesn’t ride alone. This year’s event features a challenging century ride followed by a family-friendly neighborhood cruise, led by Haddie herself. The day wraps up with a celebration with food, music, and community. The Schuellers have raised nearly $4,000 of their $6,000 goal this year. You can help them reach their goal and share a message of support on their fundraising page! |
| |
|
|
|
|
|
|
|
|
|
| Celebrate Scientific Progress at Night of Discovery |
|
| Join us Saturday, September 20, 2025 for Night of Discovery! CURE Epilepsy's annual Chicago Benefit is an exciting evening of cocktails, dinner, and dancing. Come together with our dedicated community to celebrate our collective achievements, hear stories from people impacted by epilepsy, and raise critical funds for epilepsy research. |
|
| |
|
|
|
|
|
|
|
|
|
| How Has Research Impacted Your Life? |
|
| How have clinical trials, new treatments and therapies, or scientific breakthroughs made your life better? CURE Epilepsy is gathering stories to share with Congress and the public to urge lawmakers to protect progress and push for a cure. And we need your voice! We’re looking for:
🔬 People living with epilepsy who have participated in clinical trials or benefited from research.
✨ Caregivers and family members who’ve witnessed life-changing breakthroughs help a loved one.
🩺 Health professionals, researchers, and advocates who understand the urgency of sustained investment. |
| |
|
|
|
|
|
|
|
|
|
| Recap: Joanna Sophia Around The World In 5k 2025 |
|
| In June, New York City ran, walked, danced, and cheered to honor the memory of Joanna Sophia Ioannou. Joanna was an adventurous little girl with a contagious smile and carefree spirit, who tragically passed away at nine years old from Sudden Unexpected Death in Epilepsy (SUDEP). Her family started the Joanna Sophia Foundation, determined to celebrate her life and raise awareness about SUDEP.
This year they hosted their sixth annual run/walk event, and it was bigger than ever! The streets of Flushing were packed with friends, family, and neighbors wearing pink shirts – Joanna’s favorite color. The race featured a spectacular block party with international dancers, delicious food, and larger-than-life inflatable creatures and superheroes.
The Ioannou family has raised over $250,000 for SUDEP research, partnering with CURE Epilepsy to fund research into SUDEP and sleep. We are incredibly honored to collaborate with this passionate foundation to carry Joanna’s legacy forward.
|
| | |
|
|
|
|
|
|
|
|
|
| New from the Seizing Life Podcast |
|
| Advocating for a National Plan for Epilepsy in Uncertain Times
Dr. Daniel Lowenstein discusses the current efforts to push Congress to adopt a National Plan for Epilepsy, explaining who is behind it, what it is, and what it could mean to the epilepsy community. |
| | Using Basketball to Fight Stigma and Empower Kids Living with Epilepsy
Mike Simmel shares his epilepsy journey, explains how his passion for basketball helped him navigate the impacts of epilepsy, and recounts how a personal experience with epilepsy stigma inspired him to help kids living with epilepsy and other challenges. |
| | 10 Years of Ella’s Race: Raising Awareness & Finding Hope in Fundraising for Epilepsy Research
We welcome longtime CURE Epilepsy Champion and current board member Shalee Cunneen back to the podcast to share her family’s journey with epilepsy and fundraising efforts for a new CURE Epilepsy research initiative. |
| | New from Epilepsy Explained |
|
| MEG Explained
Dr. M. Scott Perry answers your questions about MEG, or Magnetoencephalography, the imaging technique that measures magnetic fields in the brain. Dr Perry, Head of Neurosciences at the Jane and John Justin Institute for Mind Health at Cook Children’s Hospital in Fort Worth, Texas, explains MEG and discusses how it can be beneficial to people living with epilepsy. |
| | Transitioning to Adult Care Explained
Dr. Lily Wong-Kisiel, pediatric epileptologist at Mayo Clinic in Rochester, Minnesota, explains the process of transitioning a child with epilepsy from pediatric to adult care. |
| | Epilepsy and Mental Health Explained
Dr. Andres Kanner, Professor of Clinical Neurology and Director of the Comprehensive Epilepsy Center at the University of Miami Miller School of Medicine, answers common questions about epilepsy and mental health. |
| | Rescue Medications Explained
Dr. John Stern, Professor of Neurology and Director of the Clinical Epilepsy Program at the Geffen School of Medicine at UCLA answers your questions about rescue medications and how they are an integral part of a seizure action plan. |
| |
|
|
|
|
|
|
|
|
|
|
|
|
|
| |
|
