Stay connected with the latest stories from the CF community


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July 2025



CF Foundation Community Blog Digest


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Living With CF While Homeless

By Nikki Melchiorre, an adult with CF

"Living with cystic fibrosis while facing homelessness has tested me in every way. However, through it all, I've found strength, purpose, and the unshakable belief that I must keep going -- for myself and for my kids."

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ADVOCACY

Why I Speak Up About My Mild CF

By Madison Patterson, an adult with CF and mother of a child with CF

"Because I have a mild form of CF, I used to think that raising awareness and advocating were roles best suited for those more affected by the disease. But when my daughter was diagnosed with CF, I realized every voice matters and all of us need to fight for a cure."

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PARENTING

What I've Learned as a Mom With CF

By Tosha Wise, an adult with CF

"Finding a balance between motherhood, my career, and personal priorities while managing cystic fibrosis has taught me the importance of open communication, especially when life feels overwhelming, so I can fully show up for my family, my work, and myself."

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EMOTIONAL WELLNESS

How My Filipino Heritage Guides Me Through CF

By Noah Abesamis, an adult with CF

"A recent hospitalization reminded me that my strength to fight cystic fibrosis is deeply rooted in my Filipino heritage and the unwavering support of my family."

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MENTAL HEALTH

Managing CF and OCD

By Lily Harrington, an adult with CF

"Growing up, it wasn't my cystic fibrosis that fueled my anxiety -- it was the checklist of mental tasks I believed would prevent disaster. It wasn't until adulthood that I learned this behavior is actually obsessive-compulsive disorder (OCD)."

Read Lily ([link removed])



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