Dear John,

If you have a loved one with severe autism, we see you. We know the immense challenges that come with caring for someone with profound autism — challenges many of us at Children’s Health Defense face every day in our own families.

On April 16, during his first official press conference as Secretary of Health and Human Services, Robert F. Kennedy, Jr. announced that a comprehensive investigation into the autism epidemic is underway, with results expected by September. For many families, this long-awaited announcement brought hope and validation.

But instead of being met with understanding, Secretary Kennedy’s remarks about profound autism were quickly criticized by some media voices and public officials, including Senator Elizabeth Warren. These responses dismissed the harsh realities of profound autism, mischaracterizing Kennedy’s comments and minimizing the experiences of thousands of families across the country.

Senator Warren posted on X the next day.

We believe this is a critical moment to inform, educate and raise awareness. Many of you have already shared your stories online — honest, heartfelt accounts that show what profound autism truly looks like. Now, we're asking you to take that truth a step further by sending a hand-written letter or an email directly to Senator Warren.

Take Action: Share Your Story with Senator Warren

Taking one simple action can make a real difference. Whether you write a letter, send an email, or record a short video, your voice has the power to change the conversation around profound autism.

Use our ready-to-send message (which you can edit to personalize), write a handwritten letter, record a video — or do all three. Every action helps amplify the truth.

Senator Warren represents the state of Massachusetts, but even if you’re not a resident of the state, you can send her a personal message.

This is a pivotal moment — one where your voice can bring light to what has too long been overlooked. By sharing your story, you help ensure that profound autism is no longer hidden in the shadows, but seen with compassion, honesty, and urgency. Every story shared is a step toward awareness, action, and lasting impact.

This is our time. Together we will help amplify the undeniable truth about profound autism and its impact on individuals, families, and our communities. Together, we can shape a future where families are heard, supported, and never forgotten.

Your voice matters. And now is the time to use it.

With respect and solidarity,

The Children’s Health Defense Team