Ask Your Questions About Genetic Therapy Research
|
Genetic therapies, including RNA therapy and gene therapy, could potentially work for any person with cystic fibrosis, including people with nonsense and rare mutations. If you have questions about what this could mean for you, join us March 20 at 7 p.m. ET for a research webinar with Kara Foshay, PhD, and Heather Hathorne, PhD, RRT, CCRC. You’ll also learn about genetic therapy clinical trials, including how to find enrolling trial opportunities.
Register for our research webinar »
|
|
|
|
March is Colorectal Cancer Awareness Month
|
Adults with CF have a risk of colorectal cancer that is 5–10 times higher than the general population — and even higher after a lung or other solid organ transplant. Our colorectal cancer animations explain what to know about this cancer, how early screening can help reduce risk, why it’s important to prepare for a colonoscopy properly, and what steps to take for a successful exam.
Learn more about colorectal screening »
|
|
|
|
More than 150 Community Members Advocated for Patients and Progress During March on the Hill
|
During our 18th annual March on the Hill, more than 150 advocates came together to help ensure lawmakers better understand the needs of people living with cystic fibrosis. They spotlighted why we need Congress to protect the National Institutes of Health, the U.S. Food and Drug Administration, and Medicaid for people with CF.
Read the story »
|
|
|
|
BreatheCon Recordings Now Available on YouTube
|
In case you couldn’t join live, recordings from BreatheCon are now available on YouTube in English and Spanish. BreatheCon is a unique virtual event for adults with cystic fibrosis to share stories and learn from each other during panels, group discussions, and social activities. Watch now to hear the opening keynote with Tré LaRosa, an adult with CF, a discussion on different paths to parenthood, and a panel celebrating the invaluable wisdom of people with CF who have navigated decades of life with the disease.
Watch the recordings »
|
|
|
|
4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US
|
|
|
|
