January 23, 2025

Register for BreatheCon 2025  

Whether you were diagnosed with cystic fibrosis at birth or recently received a diagnosis, there’s a spot for you at BreatheCon! This two-day virtual experience offers opportunities to share stories and perspectives with people who truly “get it.” Attendees will have access to panels, group chats, and social events, including a game night and karaoke. Register to join us February 7-8 to get to know and have fun with other adults living with CF!  

Reserve your spot »

Get Help After a Natural Disaster

After a natural disaster, figuring out the next steps can be overwhelming, especially when you or a loved one has cystic fibrosis. Our disaster and emergency preparedness plan offers a helpful starting point to rebuild and can help you create a plan for future emergencies. And remember, you're not alone — if you need help finding resources, Compass is here to provide free, personalized assistance every step of the way. 

Contact Compass »

Catch Up With CF Advocacy in 2025

As we start a new year, we are excited to share our 2025 advocacy priorities, including how we plan to work with the 119th Congress and engage with CF advocacy across the country. Watch last week’s webinar to learn more about CF advocacy opportunities and how we can work together to achieve our ambitious goals in supporting the cystic fibrosis community.  

Watch the recording »

From the CF Community Blog: My Journey Through CF, Addiction, and Recovery

Madison Bayless experienced years of substance misuse fueled by the looming awareness of her mortality due to cystic fibrosis. But after hitting bottom and seeking help, she has reclaimed her mental and physical health, finding strength and community along the way.  

Read Madison's story »